Ehlers-Danlos Syndrome Awareness Month ― Date, History, and Details
Ehlers-Danlos Syndrome Awareness Month may be something you want to learn more about, and we want to help with that.
Let's dive deeper into learning more about the history of Ehlers-Danlos Syndrome Awareness Month and why people celebrate or observe it.
History of Ehlers-Danlos Syndrome Awareness Month and How to Celebrate/ Observe It
Ehlers-Danlos syndrome (EDS) is a group of heritable disorders that affect connective tissues. Connective tissues are proteins that support skin, bones, and organs. EDS can cause a range of symptoms, including joint hypermobility (joints that move beyond the normal range), skin fragility, and chronic pain.
There is no cure for EDS, but treatments are available to manage symptoms. Early diagnosis and treatment are important for preventing complications.
EDS is a relatively rare disorder, affecting an estimated 1 in 5,000 people worldwide. However, it is believed to be underdiagnosed, as many people with milder forms of the disorder may not seek medical attention.
EDS is usually diagnosed based on clinical signs and symptoms. There is no one test that can diagnose EDS. A combination of medical history, physical examination, and diagnostic tests is often used to make a diagnosis.
EDS is a spectrum disorder, which means that there is a wide range of severity. Some people with EDS have only mild symptoms, while others may experience more severe symptoms that can impact their quality of life.
There are six recognized types of EDS, each with its own set of symptoms. The most common type of EDS is hypermobile EDS (hEDS), which affects an estimated 70-90% of people with the disorder.
Ehlers-Danlos Syndrome Awareness Month is an annual event that takes place in May. The purpose of the awareness month is to educate the public about EDS and to raise awareness of the disorder.
During Ehlers-Danlos Syndrome Awareness Month, various events and activities are held around the world to promote awareness of EDS. These can include educational talks, support group meetings, and fundraisers.